Shanyna Isom has consulted every possible specialist, including
a doctor in the Netherlands, but she still as no idea what is wrong with her.
The 28-year-old beautician and former University of Memphis
law student has developed a condition so severe, fingernails grow from the hair
follicles all over her body.
"Black scabs were coming out of her skin," said
her mother, Kathy Gary. "The nails would grow so long and come out and
regrow themselves. They are hard to touch and stick you."
The disease so far has affected not only her skin, but her
bones and her vision. Because Isom is unable to walk without a cane, her mother
helps her out of bed each day.
Doctors at Johns Hopkins Medical Center in Baltimore, where
Isom is being treated, told her family that she is the only person in the world
with this unknown condition.
And now she has $500,000 in unpaid medical bills. Isom has
state insurance, but it doesn't cover medical care in Maryland. Her mother lost
her job as a medical receptionist because she looks after her daughter at home,
so savings have dried up.
(Handout/Shanyna Isom)Once a month, mother and daughter
travel to Baltimore from Memphis to monitor her treatment.
But now, Isom has put all of her energy into creating the
S.A.I. Foundation (so named for her initials) to help others with mystery
illnesses.
Bank of America has agreed to take donations at any of their
branch offices. Friends have organized fundraisers, and her high school has
dedicated a football game to her charity.
Despite her debilitating illness, Isom told ABCNews.com,
"I don't know whether to smile or cry. I am very blessed."
On her blog, Pray for Shanyna, she laments: "It has
taken all of my hair out and has left my body with scabs all over it, plus I
have lost about 200 pounds. Two years ago, I was a healthy woman on my own ...
had big dreams and goals that I was following until one day my body completely
shut down on me."
Isom was a junior studying criminal justice when the mystery
illness first occurred in September 2009, according to WLBT in Memphis, which
first reported the story.
She went to an emergency room for an asthma attack and was
given a large dose of steroids, which doctors suspected caused an allergic
reaction.
After returning home, Isom began itching. Doctors prescribed
Benadryl, but it got worse.
"It was uncontrollable and we didn't know what it
was," said her mother.
Soon, her legs turned black.
"It looked as if she had been in a house fire and
gotten burned," said Gary.
Doctors thought she had eczema or a staph infection and
prescribed drugs, but it got worse. Meanwhile, all tests came back negative.
"We could not figure out what was going on," said
her mother. "She was just breaking out everywhere. Her body was scabbed
all over."
At the same time, Shanyna was losing 10 to 15 pounds a week.
A bone marrow biopsy turned up nothing.
It was then her Memphis doctor threw up his hands.
"He said she would be like that for the rest of her
life," said Gary. "But I couldn't accept that."
Isom and her family persisted, and in August 2011, Shanyna
went to Johns Hopkins.
There, doctors determined that she was producing 12 times
the number of skin cells in each hair follicle. Instead of growing hair, the
follicles were producing human nails.
Doctors think her skin isn't getting enough oxygen -- she is
also lacking sufficient amounts of vitamins A, B, C, D and K, according to her
mother.
But with treatment, she is improving.
"Her legs aren't covered in black scabs," said her
mother. "They are looking better, and her face just looks like she has a
real bad sunburn."
25 Medicines and
Still No Cure
Today Isom is on 25 medications, but her insurance only pays
for five of them. She is awaiting the results of genetic tests that may give
doctors clues to what is wrong.
"The doctors are so caring," said Gary. "It's
just amazing how much they have done for her. We really didn't think she was
going to make it."
Isom said she slipped into a depression, but now feels
uplifted by the support of family and friends.
"I know it's a blessing that I can reach out and touch
people's hearts," she said.
She remembers the day at Johns Hopkins when she felt sorry
for herself, shuffling through the corridors on a walker.
"I saw a little girl, 4 or 5 years old, and she was
walking through the same hall and had the biggest smile on her face," said
Isom. "She had braces from [her] hip to her feet and had a walker and held
her head up so high. I thought, 'If she can, I can. I had a life. This baby is
trying to have a life.' ... I fed off her energy."
Isom said she prayed, "I will never be selfish
again."
Gary said their ordeal has been a "nightmare ... to see
her whole body shut down."
But she gets her strength from her daughter.
"Shanyna is remarkable," said Gary. "She has
been able to hold her head high. I keep telling her we are going to make it,
through the grace of God."
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